Obtaining meaningful informed consent: preliminary results of a study to develop visual informed consent forms with children |
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| Authors: | Mónica Ruiz-Casares Jennifer Thompson |
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| Institution: | 1. Department of Psychiatry, McGill University, Montreal, QC, Canada;2. Centre de Santé et de Services Sociaux de la Montagne, Montreal, QC, Canada;3. Centre for Research on Children and Families, McGill University, Montreal, QC, Canada;4. Department of Integrated Studies in Education, McGill University, Montreal, QC, Canada |
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| Abstract: | This pilot study explores children's understanding of informed consent (IC) and the potential of participatory visual methods for improving the IC process. Strategies used to improve the IC process have generated mixed evidence as to their ability to increase understanding and willingness to participate among potential research participants. Two workshops with 13 children aged 8–12 years were held to discuss the content of IC forms, particularly confidentiality and voluntary participation, and the children took photographs to represent these concepts. Simplified written IC forms generated boredom, disengagement, and/or anxiety for some children. Preliminary results of this pilot study indicate the potential to enhance the IC process by using participatory visual methods with children to make visual IC forms. |
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| Keywords: | informed consent research ethics visual methods participatory photography children young people |
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