Embodying brainstorms: the experiential geographies of living with epilepsy

This paper examines how living with epilepsy involves the complex interaction of knowledge of the unstable body, surrounding space and social relations. Through an engagement with written testimonies, it is argued that the spatial extent of everyday life varies with willingness to take socio-emotional and material risks in terms of when and where losses of bodily control (‘seizures’) might occur. I suggest that spaces and activities once taken-for-granted become potentially ‘unsafe’ and require renegotiation as trust in the limits of the body is disrupted. Findings confirm but also build upon previous work by geographers of chronic illness and impairment by engaging characterisations of the temporalities of fluctuating symptoms and of illness as manifesting either visibly or invisibly. Furthermore, it is argued that how people respond to the complete loss of bodily control differs in key ways to people coping with partially impaired control of the body. The paper concludes by asserting the potential for using written testimony as source data to highlight the voices of people whose spaces may otherwise remain silent.