Autistic culture online: virtual communication and cultural expression on the spectrum

In this article, I examine cultural narratives about the lives and places of women with mental illness in the commercial Hollywood film: Girl Interrupted (1999). In contrast to most of the disability studies literature concerned with cultural representation, this article explicitly examines how the spatiality of ‘mad women's’ lives is constructed through film. Drawing on post-structuralist, and feminist perspectives on disability, and on conceptual ideas from the limited social geographic literature concerned with the lives of persons with mental illness, I explore the contradictory cultural narratives about the lives and places of women with mental illness constructed through this film. This approach recognizes that representations of ‘mad women’ and their places in society and space involve contradictory, tension-laden relationships between spectator and cultural product, complex discursive negotiations of meaning, and gendered processes of meaning-making, in some ways affirming mad women's lives and in others perpetuating negative stereotypes about women with mental illness and where they belong.     

Hacking the master code: cyborg stories and the boundaries of autism

In this paper, we consider how the use of Internet technologies by individuals on the autism spectrum (AS) may contribute to recoding the spatial, sociopolitical, ontological, and epistemological boundaries commonly assumed to delimit autistic from non-autistic lifeworlds. Drawing on the work of Donna Haraway, we argue that the responses of AS individuals to a survey about online communication suggest these individuals are engaged in a form of cyborg writing, admixing constraints and opportunities in a way that opens alternative, polycentric, and indeterminate but nonetheless important political possibilities for people on (and off) the AS.     

Imagining Otherwise: Autism,Neuroaesthetics and Contemporary Performance

Abstract

Perspectives on the phenomenology of the autistic experience are presented with particular reference to the imagination in autism and what may be conceptualized as ‘neurodivergent aesthetics’. Drawing upon a research project that explored the potential of drama as an ‘intervention’ in autism, an attempt is made to de-mythologize the condition by challenging stereotypes and by suggesting that the multimodalities of performance offer an appropriate space for ‘encounters’ with autistic states of being while also questioning the dualisms which distinguish between the aesthetic and non-aesthetic.     

Private Citizens as Policy Entrepreneurs: Evidence from Autism Mandates and Parental Political Mobilization

Growing bodies of research in the social sciences point to politicians, bureaucratic officials, interest groups, and other actors who serve as policy entrepreneurs. In this paper, we argue that private citizens can also serve a primary role as policy entrepreneurs. To analyze this phenomenon, we investigate the behavior of private citizens and their role in changing state policies surrounding insurance mandates for autism coverage. Using a thematic analysis of focus groups and interviews conducted with individuals active in the push for autism policy change, we demonstrate that private citizens meet all of the requirements identified for policy entrepreneurs in the existing literature. We then investigate when, why, and how these private citizens step forward into the policy process as entrepreneurs. We show that entrepreneurship occurs when private citizens have needed resources, a sense of duty to fix a policy status quo they see as unjust, and a stake in policy change. We conclude by discussing the importance of our findings to the study of public policy and their generalizability beyond autism policy.     

‘Travel in parallel with us for a while’: sensory geographies of autism

Drawing on autobiographies by authors with autistic spectrum disorders (ASDs), we consider how ASD authors use travel analogies and spatial metaphors to explore questions of difference in autistic sensory experience. ASD authors often appeal to the geographical imagination in an effort to communicate with ‘neuro‐typical’ others for whom autistic behaviour can seem so peculiar as to be almost alien. Blurring the boundaries between pathology and normality, ASD authors counter typically negative and/or dismissive assessments of deficiency, disability and deviance with explanations of reasonable difference in environmental response. This paper takes up the challenge of ASD authors to ‘travel in parallel’, circumventing biomedical ‘checkpoints’, if only temporarily, in order to better understand the construction and experience of autistic lifeworlds, wherein spatial and embodied coherence is challenged at every turn and ‘sensory mapping’ is a means of survival. Rather than viewing perceptual and processing challenges characteristic of ASDs as problems to be fixed, we suggest non‐autistic others might instead attempt to understand and appreciate sensory diversity in, and on, authors' own terms.