A Short History of the Notion of Neurodegenerative Disease

The notion of heredity of degenerative constitutions of human beings contributed in the nineteenth century to the fear for deterioration of the human race and in the twentieth century to attempts by several Western Countries, particularly Germany, to improve the inborn qualities of their populations by eugenic measures. In the years following World War II, the term eugenics was eradicated from medicine. The qualification degenerative disappeared from genetics and psychiatry but remained in use to denote decay of tissues and cells. The adjective neurodegenerative came in vogue in neurology and was mostly applied to brain diseases. Definitions in the literature indicate that neurodegenerative diseases are considered as to be age related, incurable, and largely untreatable chronic progressive diseases of the central nervous system. Scrutiny of available data shows that the notion concerns an ill-defined group of genetic and idiopathic disorders. Genetic central nervous system diseases may become manifest at all ages and are accessible for symptomatic treatment. Investigations of animal models suggest that not all neurodegenerative diseases are inherently incurable. Alternatives for the terms neurodegenerative and degenerative are available.     

"Hopelessly entangled in Nordic pre-suppositions": Catholic participation in the American Eugenics Society in the 1920s

While American Catholics stand out as some of the few voices of cultural opposition to the eugenics movement in the United States, Catholics and eugenicists actively engaged in conversational exchanges during the late 1920s. In association with the Committee on Cooperation with Clergymen of the American Eugenics Society, John A. Ryan and John Montgomery Cooper engaged in a process that Sander Gilman and Nancy Leys Stepan call "recontextualization," whereby they challenged the social and scientific basis for eugenics policy initiatives while constantly urging American eugenicists to rid their movement of racial and class prejudice. In the process, they participated in a revealing debate on immigration restriction, charity, racial hierarchies, feminism, birth control, and sterilization that points to both the instances of convergence and divergence of Catholic and eugenic visions for the national community.     

Ethnic minorities and the eugenic promise: the Transylvanian Saxon experiment with national renewal in inter-war Romania

The history of inter-war European eugenic movements overwhelmingly focuses on projects proposed by nation-states, and in doing so frequently overlooks the possibility of ethnic minorities pursuing independent, or even competing, nation (re-)building agendas. This article explores how the German Transylvanian Saxon minority perceived, appropriated, and ultimately pursued the eugenic promise of a healthier, purer, nation in inter-war Romania. It explores the life and work of two of the discourse's leading figures, namely Heinrich Siegmund and Alfred Csallner, before turning to eugenic policy of awarding substantial ‘honorary gifts’ for supposedly eugenically valuable children pursued by Fritz Fabritius' Fascist Self-Help movement after 1933.

The analysis of Saxon eugenics offered here wants to be understood as both a case study and a stepping stone, an opportunity to compare and contrast it with those potentially advanced by other ethnic minorities, and to thereby rethink the relationship between eugenics and ethnic minorities more widely. Therefore, to augment historiography's perception of eugenics as a state-wielded tool of victimisation and assimilation with another perspective, namely that of how and why a biological understanding of identity was ideally suited to an ethnic minority striving towards empowerment and re-homogenisation – towards a ‘eugenic fortress’.     

L’eugénisme et la protection de l’espèce humaine dans les lois bioéthiques Vers une nouvelle construction juridique de l’homme

The aim of this study is to bring to the fore some issues concerning human rights unleashed by the bioethical laws of July 1994, regarding the application of biotechnologies to reproduction. To achieve this aim, an analysis is offered of the legal arrangements, set by law in order to determine the procedures related to the selection of embryos and the transformation of their genetic characteristics. These analyses are then compared to the eugenic procedures instituted in the West during the first half of the xxth century. As a result, the idea is challenged, that eugenics is a category fit for the characterizing the biopolitical project contained in the bioethical laws. To conclude, the aim is made that what is a stake, as far as human rights are concerned, is the fate of the idea of man and of the subject of rights that is involved in these laws.     

Eugenic Sterilisation in Scandinavia

The view that eugenics was based on unscientific views has been put forward by a number of historians. It has been claimed that the early phase of eugenics, so-called mainline eugenics, was unscientific, biased against the lower classes, and racist. An ensuing reform eugenic phase, however, has been considered scientifically sound and politically progressive. This paper, based on recent studies of eugenic sterilisation in Scandinavia, challenges this view. The political and scientific arguments in favour of eugenic sterilisation laws in Scandinavia were complex and ambiguous, and it is empirically impossible to identify a problematic mainline eugenic phase and separate it from a more acceptable reform phase. Social and scientific arguments for sterilisation appeared side by side. To improve the gene pool was only one of a host of aims of eugenics, which “was” not a fixed, well-defined ontological entity with one definite purpose, but a concept with multiple meanings.     

Eugenics ideals,racial hygiene,and the emigration process of German-American neurogeneticist Franz Josef Kallmann (1897–1965)

ABSTRACT

Biological psychiatry in the early twentieth century was based on interrelated disciplines, such as neurology and experimental biology. Neuropsychiatrist Franz Josef Kallmann (1897–1965) was a product of this interdisciplinary background who showed an ability to adapt to different scientific contexts, first in the field of neuromorphology in Berlin, and later in New York. Nonetheless, having innovative ideas, as Kallmann did, could be an ambiguous advantage, since they could lead to incommensurable scientific views and marginalization in existing research programs. Kallmann followed his Dr. Med. degree (1919) with training periods at the Charité Medical School in Berlin under psychiatrist Karl Bonhoeffer (1868–1948). Subsequently, he collaborated with Ernst Ruedin (1874–1952), investigating sibling inheritance of schizophrenia and becoming a protagonist of genetic research on psychiatric conditions. In 1936, Kallmann was forced to immigrate to the USA where he published The Genetics of Schizophrenia (1938), based on data he had gathered from the district pathological institutes of Berlin’s public health department. Kallmann resumed his role as an international player in biological psychiatry and genetics, becoming president (1952) of the American Society of Human Genetics and Director of the New York State Psychiatric Institute in 1955. While his work was well received by geneticists, the idea of genetic differences barely took hold in American psychiatry, largely because of émigré psychoanalysts who dominated American clinical psychiatry until the 1960s and established a philosophical direction in which genetics played no significant role, being regarded as dangerous in light of Nazi medical atrocities. After all, medical scientists in Nazi Germany had been among the social protagonists of racial hygiene which, under the aegis of Nazi philosophies, replaced medical genetics as the basis for the ideals and application of eugenics.     

"Yea, I have a goodly heritage": health versus heredity in the Fitter Family contests, 1920-1928

By the 1920s, the future of the middle-class family had become a topic of great concern for mainstream Americans. This widespread concern led to a new acceptance of the discussion of sexual and marital issues in print and in public. Within this public discussion, eugenicists, physicians, clerics, sociologists, and various others offered solutions to the questions and concerns of their rapidly changing society. The Fitter Family contests, sponsored by eugenicists and held at state fairs in the 1920s, reflected these public and professional anxieties. Though infused with eugenic ideas about race betterment through better breeding, the contests were equally concerned with improving the health of individuals and strengthening American families.     

Abortion and eugenics

The late 1960s and early 1970s saw a revolution within foetal diagnostics. In roughly the same period, legal measures in many countries permitted the termination of pregnancies in cases of suspected foetal abnormalities. Critics have claimed that the resulting abortion policies resemble the old, state‐imposed eugenics of the early 20th century. This article presents some evidence to the contrary. In Norway, which is the article's main topic of concern, so‐called eugenic clauses in the abortion legislation were passed well before the revolution in foetal diagnostics. More importantly, other motives were historically more significant than eugenics for the development of modern Norwegian abortion policies. Consequently, any eugenic effect of these policies should be considered a result of coincidence rather than design – or so the article argues. Brief comparisons with the other Nordic countries are included.     

Origins of Difference: Professionalization,Power, and Mental Hygiene in Canada and the United States

This study examines the emergence and development of mental hygiene professional organizations in Canada and the US by analyzing discursive differences in the publications of two sister committees: the National Committee for Mental Hygiene and the Canadian National Committee for Mental Hygiene. The analysis finds that while mental hygiene in North America initially emerged as a single, shared continental professional discourse, the two movements diverged in critical ways for reasons directly related to their institutional contexts and donor bases. Even as US popular and political discourse veered towards eugenic policies, the US mental hygiene discourse shifted sharply away from eugenics. In contrast, in Canada, mental hygiene publications focused increasingly on the moral dangers of Canada’s immigrant population and played a role in producing scientific legitimacy for eugenic policies. This analysis suggests that the different trajectories of the two professional communities have their origins in organizations’ membership and donor bases, not broader differences in national character.     

The reviving debate in eugenics: eugenics publications 2003-early 2005 and eugenics data bases

Interest in medical procedures that will reduce genetically-induced diseases is increasing, even though reaction to any consciously directed program in eugenics remains strong. The author provides an extensive survey of recent publications and data bases that discuss various aspects of eugenics in the light of current scientific knowledge, medical technology and popular ethics.     

Back to the future: eugenics--a bibliographic essay

The following essay is a review of the literature about the American eugenics movement produced by scholars over the last fifty years. The essay provides an explanation for today's renewed interest in the subject and for why the science of eugenics remains relevant to contemporary society. The essay examines the catalyst to re-examine the eugenics movement, the influence of Darwinian thought upon its development, the political and institutional support for its growth, the relationship between eugenics, sterilization, and sex, and how the twentieth-century promises of the science of better breeding was a precursor to the twenty-first-century promise of genetic engineering.     

Human Genetics As a Bridging Science

Abstract

The history of the biological sciences since 1900 shows that genetic theory has to act as a unifying principle bringing together various, and sometimes quite different, fields in the analysis of common problems. This historical process can be studied especially well in the development of human genetics – a branch of science that, mainly through hybridisation, first with biochemistry, then with cytogenetics, and recently with molecular biology, developed from an outsider's hobby into one of the most challenging fields of biological and medical research. Concepts and approaches derived from genetic theory are now influencing and, in part, determining the structure of an increasing number of scientific specialities – especially in medicine – leading to important practical applications. Genetic theory and methods might also become increasingly useful for analysis of brain function in relation to behaviour.     

'Homo Sacer' out of left field: communist "slime" as bare life in 1930s and Second World War Sweden

This article maps ways in which radical left‐wing politics in 1930s and Second World War Sweden were conceived in medico‐biological and eugenic terms that expressed strong dehumanizing sentiments. The article engages Agamben's and Foucault's thinking on ‘biopolitics’ and ‘biopower’, and extensively exemplifies dehumanizing discourse as deployed by leading Social Democratic politicians, leading figures of government within the police and military, as well as by editors of both right‐wing and Social Democratic press. Ways in which individuals labelled ‘Communists’ were spatially managed in terms of extensive surveillance, registration, detainment planning and forms of incarceration are addressed. I further discuss state measures that may be seen as elements of a state of exception, some measures implemented against ‘Communists’, and others against individuals deemed to have undesirable characteristics seen to be hereditary. In employing Agamben's notion of ‘inoperosity’ in a discussion of a state paradigm of social productivity, eugenic measures in the building of the Swedish welfare state are then related to the dehumanizing framing of ‘Communists’. In conclusion, conditions for regaining a place in the body politic are briefly addressed. The article's focus on ways in which the ethnic and racial same was dehumanized within a democracy on political grounds results from a conscious effort to complement studies of dehumanization as related to colonialism, dictatorial regimes as well as identity politics.     

Eugenics,Sterilisation and Modern Marriage in the USA: The Strange Career of Paul Popenoe

This article uses the fifty‐year career of Paul Popenoe as a lens through which to examine the North American eugenics movement. Popenoe, a leading advocate of compulsory sterilisation in the 1930s, became a celebrated marriage counsellor in the 1950s, famous for the Ladies' Home Journal feature ‘Can This Marriage Be Saved?’ The ease with which Popenoe metamorphosed from a champion of sterilisation to an expert on marriage was made possible by, and helps to reveal, deep ideological affinities and organisational connections between eugenics and marriage counselling in the United States.     

Iran–US Public Health Cooperative Organization (PHCO): Education,Healthcare, and Health Services in the Southwest of Iran (Fars), 1950–60

Fars is among the largest provinces of Iran that received the most technical assistance from the American economic delegation in the 1950s. After settling in the province and during ten years of activity, the American delegation provided technical assistance in the fields of health engineering, health education, preventive medicine, nursing, medical services, and medical education. This paper explains how the technical assistance of US personnel contributed to the general health of the Fars province. The findings of this research show that after the formation of the Public Health Cooperative Organization (PHCO) in 1950, not only did most of the cities and villages of this province began to enjoy safe drinking water, but also public health improved. Additionally, the birth of children with disabilities and the spread of infectious diseases such as malaria and trachoma declined by means of preventive medicine centers and health education.     

Deadly medicine

This article discusses the methods the United States Holocaust Memorial Museum used to make an exhibition on the complex history of Nazi eugenics accessible to the museum's mass public and at the same time, provocative for special audiences consisting of professionals and students from the biomedical fields. Deadly Medicine: Creating the Master Race showed how both eugenics and related "euthanasia" programs in Nazi Germany helped pave the road to the Holocaust. The exhibition implicitly evoked the present-day appeal of biological explanations for human behavior and of new visions of human perfection. Educational programs used the exhibition as a springboard for discussions of bioethics and medical ethics.     

Politisch motivierte Emigration deutscher Ärzte

In 1933 the nazis had immediately started to reorganize the health service and the medical profession on the basis of eugenics and efficiency. For everybody who had been engaged in the institutions of social medicine or social hygiene in the Weimar Republic the inhibition of medical practice, misery, distress, persecution, imprisonment or at the best emigration had been the consequence of it, for political and mostly also for racial reasons. But for these physicians who had to flee from Nazi-Germany the situation in the immigration countries had not been a good one in most of the cases. Therefore it is only possible to speak - if you neglect the special situation of the psychiatrists in the U.S.A. - in particular cases of transfer of medical science into the immigration countries from Germany. Most of the immigrants stayed after the war in their new homelands. The loss of these progressive aspects of social hygiene caused by the emigration of these physicians 1933 and afterwards from Germany can be noticed in this field of medicine and public health service in Western Germany until now.     

Defining life: the ethical context for human quality questions

The links between ethics, medicine and the law cannot readily produce appropriate criteria for human quality questions, largely because ethics are misconstrued where they are not excluded; but also because the science at issue is full of unknowns. The paper surveys issues in eugenics, abortion and euthanasia.